For years, Hannah Wingert had been feeling exhausted, debilitated by pain. And for years, doctors had been running tests, which all kept coming back normal. But after talking to her sister and to friends about their aches, the mom of four decided to write ALL of her symptoms down.
The list included things like headaches, joint and back pain, dizziness, sprains, G.I. issues, and more. Wingert saw a couple more doctors, but it was while she waiting to see yet another specialist that she started to research her symptoms. She realized that two of her sons had similar symptoms, and perhaps they might be linked to a genetic disorder called Ehlers-Danlos syndrome, she writes in The Mighty. People with EDS don't produce the collagen their bodies need to keep their joints and connective tissues strong.
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Sure enough, a geneticist informally diagnosed Wingert and one of her sons with ED--though tests set up for the family won't confirm this until June. But for Wingert it was a revelation--and she cried on the way to the parking lot.
"I had just received a diagnosis of an incurable, untreatable, progressive genetic disease for both me and my son, and yet, they were tears of joy. After a lifetime of thinking I was a pathetic wimp, I finally knew I wasn’t. I could stop pushing my body beyond what it was capable of doing in an effort to be normal and start taking care of myself," she writes.
So even though the diagnosis was a blow, especially as it concerned her kids, her life finally made more sense to her.
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You can read more of Wingert's journey and thoughts about life and parenting on her blog Sunshine and Spoons.
via The Mighty
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